Friday, September 4, 2009

Sunday, August 23, 2009 10:58 PM

Sunday, August 23, 2009 10:58 PM, EDT

Tomorrow is the day we've been waiting for! After 22 full days in the ICU at Mary Washington Hospital, Kyle will be transferred to the Kluge Pediatric Rehabilitat
ion Hospital at UVA in Charlottesville, VA. His stay there will be between 8 and 12 weeks. The first major goal will be to wean him off the vent and then get him in to physical, occupational and speech therapy! He'll be working hard!

He's had a pretty good weekend in ICU...fever will periodically spike, but being controlled with Tylenol. He's been off the vent a couple of times and on his trach collar - where the vent is turned off and then a breathing mask is placed near his trach for oxygen. On Friday he did a magnificent 40 minutes of breathing on his own. Saturday, about 20 minutes. It really does tire him out! But he's a trooper and they haven't really had to set the vent settings to assist him to breath in the last 48 hours.

He's ready to start the next phase of his rehab and get to new settings and new friends. We have met some remarkable people and families of patients in the ICU and admire their stregnth and outlook. These will be friends that we will certainly stay in touch with in the future.

Will write more as Kyle gets transferred and settled at Kluge. Thank you all for your kind words and notes. We can't wait to get Kyle in front of a computer so he can read each and every one and see how much love and support everyone has given him.

Thanks and we'll update more on Monday from Charlottesville!

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