Thursday, December 17, 2009
Kyle continues to make progress in his rehab and we received some of the best news yesterday that Kyle has been accepted into the Woodrow Wilson Rehabilitation Center in Fisherville, VA and will be going there on Monday, January 4th. He'll be there for an undetermined amount of time while they focus on sharpening his activities of daily living, physical therapy, and independence skills. Also, they will be working closing to work with him in the vocational skills area, getting him ready to go back to work and school. His family is thrilled that this is happening so fast after his discharge from Kluge, so that he can really continue to focus on his recovery.
Physical therapy and occupational therapy continue in the home and we have a wonderful home aid, Sam, that stays with Kyle during the day to help him out. Kyle's physical health is good and he loves getting visitors at home!
Christmas is extra special this year with Kyle home and then getting ready for the next phase of his life. Our family wish you all a very Happy Holiday season and we pray for your good health and success in 2010!
Friday, December 4, 2009
Monday, November 23, 2009
It's been a busy couple of weeks for Kyle, with some great news - he is now able to wiggle his toes on his right foot and lift up, ever so slightly, his right leg! This is wonderful news meaning that the nerve connections in his spinal cord are making connections with his muscles. Kyle's PT's, Marc and Brian, have been working with this new discovery to continue to strengthen his legs. Kyle is now able to transfer himself from the bed to the wheelchair and back in to bed. This is all wonderful news and will allow him to continue to work on his activities of daily living at home.
Kyle will be home for about 6 weeks and then go to the Woodrow Wilson Rehabilitation Center in Fisherville, VA. We're not sure the exact time frame he will be there, but it could be 1 to 3 months. They will work with him to strengthen his already developed skills and help him with vocational skills to get him ready for work, college and more independence.
Kyle has also been working hard to educate the public about his story and the dangers of driving drowsy. He was featured on WUSA Channel 9 two weeks ago. Here's the link to view the broadcast - http://www.wusa9.com/rss/local_article.aspx?storyid=93566
He appreciates everyone contacting him and sending cards and letters. His new address for those who want to continue to write to him is:
60 Larkwood Court
Stafford, VA 22554
We'll be sure and post some pictures of his coming home!
Friday, November 6, 2009
He's working hard in physical therapy and occupational therapy and we are now starting to evaluate equipment and determine what he's going to need to come home. He continues to work hard on transferring from the bed to the wheelchair and back...it's not as easy as it looks! He'll continue with outpatient therapy when he returns home in a few weeks.
Then, he'll get ready for his next journey to the Woodrow Wilson Rehab Center in Fisherville, where they will access his condition and work on sharpening his skills in areas such as computers. He will start that program on January 4th.
Thanks to everyone that has offered their assistance in helping us get the house ready for Kyle's homecoming. We'll be calling you all very soon!
The holidays will have a special meaning for us this year as we celebrate Kyle coming home and just being thankful that we can all be together!
Thursday, October 29, 2009
The biggest and best news is that his neck has healed wonderfully from the surgery back in August. It's been almost 3 months and Kyle has done everything right...tolerated the halo well, done really well in the new neck brace and now his medical team takes off the neck brace at least one hour a day. This decision was made on Tuesday, and so Tuesday, the brace was off for one hour. Each day, an hour is added to remove the brace so that Kyle can get used to not having anything on his neck and start to learn different therapy methods to get around! They will do another set of xrays on day 24, just to make everything is still good, and then no more brace! Very exciting!
We have a target date of November 24th for Kyle to be released from KCRC. Thanksgiving will be extra special this year! In the next few weeks, Kyle will be working super hard to concentrate on his activities of daily living, or ADL's as we call them such as doing laundry, cooking, bathing, brushing teeth, shaving, everything that is done is every day life. He will also have another trip outside KCRC to go shopping next week!
Kyle is doing a great job handling all the different aspects in life. He is handling things in a very mature manner and continues to strive for his independence. The holidays will be extra special for everyone this year since he will be home.
Again, we'd like to thank everyone that contributed to the benefit concert evening at the University Cafe for everyone that has made a donation to the medical fund. All of the proceeds will help as we are learning about all the equipment Kyle will need to successfully gain his independence back. Insurance doesn't cover much of what is needed, so everything that people have so kindly given will be used for this equipment.
The family is working on establishing a foundation in Kyle's name to help bring awareness of drowsy driving to the public and hopes to be able to even establish a scholarship for students at his high school, North Stafford High! If bringing this issue of drowsy driving to the forefront helps even a handful of people a year, then Kyle's desire of this not happening to others will come true.
In November, there are several events happening that will benefit the Medical Fund. On November 12th, a talent show at North Stafford High School take place. The cost of admission will be $5 with all the proceeds going to Kyle's fund. It begins at 7:00 pm and will take place in the NSHS Auditorium.
Also, on November 19th at CiCi's in North Stafford at the Doc Stone location, a fundraiser will take place. We invite you to come and enjoy a great dinner where part of the evenings proceeds will go to the medical fund as well.
The family would like to thank Barbara Smiley and NSHS SCA and advisor Pam Smith for making these events a reality. Kyle has a very strong loyalty to his school and all these events make him smile - he just wishes he could be part of them. But he is in spirit!
Kyle still loves to get cards and here from friends, so feel free to drop him a note. We'd hoped that he would be home a little sooner, but we feel the training and rehab he is getting at KCRC is top notch and they want to continue to work with him to help get him in the best shape to come home and get back to life in Stafford!
Thursday, October 15, 2009
Team meeting was held yesterday and Kyle continues to make good progress with his rehab. He is meeting some of his goals, able to set new goals and continues to work hard on goals a little harder to reach.
Kyle will have another evaluation on his neck next week to determine whether or not he has to have more surgery. Keep your fingers crossed that all has healed well and he'll be cleared on the orthopedic side.
He wants to thank everyone that has donated items for the Benefit this weekend at the University Cafe in Fredericksburg. There is over 50 items for raffle and over 20 items for silent auctions! Businesses, friends and family have been SOOO supportive of this effort. There are raffle items from restaurant, retail stores, nail salons, massages, car washes and MUCH More including the big prize - $250 gift card from Wegmans! We love Wegmans!! Silent auction items range from a brand new recliner, health club memberships, hand made wicker baskets full of goodies, electric guitars, and much more! We have even been given a week at a beautiful oceanfront condo in Ocean City!!
We hope to see you on Saturday for an evening of fun and friendship!
Monday, October 12, 2009
Monday, October 5, 2009
We are still waiting to here when Kyle will be going to the Woodrow Wilson Rehabilitation Center in Fisherville, VA. This facility will help him polish his skills and prepare him to go back to work and get ready for more school.
The Freelance Star Newspaper, based in Fredericksburg, is writing a feature story about Kyle and his accident and his rehab. They were at the KCRC most of the morning Saturday, speaking with Kyle about his progress. He spoke with such clarity and had so many positive impressions about his recovery and his future. Kyle told me yesterday that he wants to be able to help people in his situation in the future and help them through the initial rehab in hopes that they can see what hard work can lead to. It's very refreshing to hear a 19-year old speak like that. He said he doesn't want anyone to have to go through what he's gone through and has promised to do what he can to make teenagers aware of the dangers of falling asleep behind the wheel.....it was truly moving to hear him speak like that so early in this stage of his rehab.
He is trying hard to contact everyone that has left him messages on his blog page and CaringBridge page to thank them for the words of encouragement and support. All he could say was "wow..they left me a note" and "these comments are so encouraging"...he has read every single one of them!
Tomorrow, we will once again meet with his medical team to outline his goals and objectives for the remainder of his stay at the KCRC. He has jammed packed days of PT, OT, Rec Therapy, and school, so he'll be working hard for the next few weeks.
Thank you to everyone that has prayed, written, donated, and thought about Kyle for the last 2 months. He is using all that energy to work hard to get better and come home! Keep channeling that energy to him...it's not going un-noticed!
Wednesday, September 30, 2009
He has been moved to a new room and is now in "rehab" status, no longer inpatient acute care. So, the clock ticks from this moment on and we start to see the light of him coming home soon! His medical team is in the process in the next 3 days of compiling all of Kyle's goals and the time frame to reach those goals. We will meet with them next week to review his progress and then determine the amount of time he will remain at KCRC. He will now be working in rehab for about 5-6 hours a day...very busy boy!! His lungs are clear, he's tolerating the food - in small quantities and somewhat bland items for now, no infections - his medical team is amazed at the difference and this really stems from having that tube inserted into his PEG feeding tube that allowed them to increase his nutrition formula every day and gives him the energy he's needed to progress further. He is gaining strength and is working hard on transfers from a wheelchair to the bed and a bench. Everyone is very proud of him and his determination to get work hard and get home!
Next step will be another rehab program in Fisherville, VA, where he will sharpen his ADL (activities of daily living) skills and enter into a Vocational Rehab program. They will work very closely with him to recapture the skills he needs to perform certain job duties and working in any sort of office/job atmosphere. We'll know more about that program soon. He will probably come home for a short period of time before he goes in to that program.
Keep those good thoughts and prayers for strength coming! They are working and he's getting stronger every day!
Monday, September 28, 2009
This new development will certainly help his rehabilitation plan and his outlook. Next, we just wait for that halo to be removed the first week of November which will make all the difference in the world.
They are starting a plan to begin feeding him solid food as well! Planning is under way for him to probably be switched over to the Rehabilitation side now that alot of his chronic conditions are being resolved. We'll know more tomorrow!
Thanks everyone for your prayers and notes of encouragement! They are really working!!!
Wednesday, September 23, 2009
This afternoon, he had bout of very low blood pressure, but they were able to get it back to normal after about 2 hours and plenty of IV fluids. He's been complaining of nasty headache, so no PT today, just Occupational Therapy.
The C-diff appears to be on the way out - yeah!! - so we'll see when the isolation mode will be lifted. It appears to be about 2 weeks until they will have a more set plan for taking him off the vent..we'll follow closely.
Thanks everyone and we hope that those of you in the Northern VA area will be able to make the special evening of music and conversation at the University Cafe, Oct. 17th. Diane, Adam, Barb and Carol have arranged for DOZENS of raffle items and silent auction items, not to mention the wonderful music lined up! We can't wait to see all Kyle's friends and gather for a great evening. For those of you who can't make it, we will miss seeing you in person, but you will be there in spirit.
Tuesday, September 22, 2009
He continues his therapy routine each day, getting stronger and progressing in learning new ways of getting around and transferring. His Physical Therapist, Marc tells us he is a very instinctive person and seems to know the natural way of moving around from wheelchair to PT mat. Kyle is embracing his therapy in a positive way, which makes it more probably that Kyle will reach all the goals that will be set for him while in rehab!
We should know more soon about a timeline regarding his stay in the acute care setting and moving to a rehabilitation status. Also, his medical team will update us with a timeline to wean him off the vent!
Saturday, September 19, 2009
They've decided to keep his halo on for 5 more weeks, the full 3 months. Better to be on safe side and not remove it. So he'll skip the CT scan next week and just continue with x-rays to make sure all is well. His feeding tube insertion went really well and this will allow the amount of nutrition to increase. Hopefully mid-week, respiratory will insert a valve in his trach to allow him talk. This will be huge for Kyle as he has been trying to communicate better for weeks.
He's looking forward to a relaxing day tomorrow and starting his week again on Monday with PT, OT, Rec therapy and speech. He's going to be a busy boy!
He wanted us to thank everyone for the cards he's received. They are hanging on the wall reminding him every day of everyone that is thinking of him!
Thursday, September 17, 2009
His respiratory team continues to slowly begin to wean him off the vent and we should know soon a better time frame of when they think that will become a reality.
So Kyle will continue his PT, OT and Speech therapy while his medical team continues to treat the other chronic physical issues. Still no time set for when he will enter the "rehab" status full time. While keeping him in the acute care status works to his advantage in getting him healthy, we can't help be sad that he won't be home sooner than later. But we all take this one day at a time and leave his health up to the professionals who are doing such a great job with him at UVA. They are truly wonderful and doing a great job with Kyle.
Thanks again for sending all the cards to Kyle. He loves getting mail and it brightens up his room and his mood. He is very appreciative of all your thoughts and inspiration.
Monday, September 14, 2009
His breathing is good - breathing room air, keeping up his oxygen saturation levels and only has about 30% assistance with the pressure. They will continue to monitor this closely and begin to wean the assistance down in the next couple of weeks! His lungs seem to be clearing up nicely and his C-diff is probably on the way out, but he's still in "isolation" mode.
So many thanks for everyone that has been down to see him and he loves getting cards and letters. Here's the address if you'd like to drop him a note:
2270 Ivy Road
Charlottesville, VA 22903
Friday, September 11, 2009
The first two pictures is Kyle outside last Sunday in his wheelchair being visited by Sheena the therapy dog. Everyone knows Kyle loves animals and Sheena was certainly a hit! He got to feed her and visit with her and she'll be back to see him on Sundays!
Thursday, September 10, 2009
He handled the drive and the moving really well and just took it easy for the rest of the day. Tomorrow, he will return to his regular schedule of physical therapy, occupational therapy, recreational therapy and speech therapy. He will also have some chest x-rays and neck x-rays done as the orthopedic team will be evaluting how much longer he will need to wear his halo! He is scheduled for a CT Scan in 2 weeks to determine if the bone in his neck has fused and if so, off comes the halo and on goes a hard collar. At the same time, they are begin working hard to wean him off the ventilator! Very exciting!!
Wednesday, September 9, 2009
A trust fund has been set up for Kyle to help with his medical expenses and we are so appreciative of all of the gifts given to him. Since he can't quite talk yet with the trache in, we know he would say Thank you to everyone for thinking of him. Your kind thoughts and prayers and gifts are so appreciated and will certainly go to good use.
We are very excited to let you know about an evening of great music, great food and fun at the University Cafe in Downtown Fredericksburg on October 17th. We hope that you can join us to listen to the sounds of local Fredericksburg musicians, especially Adam Dawson, the man behind this mission.
We feel blessed to know the Dawson's, Diana, Jim and Adam for many years and we were lucky enough to have Adam work for us when we had the Snappy store for 2 years. He's like part of our family! He has been planning this special event for weeks and now and we're so excited and can't wait to go down and see everyone. We hope you'll mark your calendar and join us for this special evening. We should have a full line up of artists soon. University Cafe will be donating a portion of their receipts that evening to Kyle's Medical Fund as well as setting up raffles with prizes from local sponsors! We wish that Kyle could be with us that evening, but he'll still be here in Charlottesville, but certainly with us in spirit. Please keep an eye out for more info and we hope to see you there!! Many thanks to Diane and Adam for setting all this up. We don't know what we'd do without you!
Kyle had a good day today and was feeling much better. He had a good PT session and OT session and learned a new dice game in Rec Therapy. Tomorrow, he will have outpatient surgery at the UVA Medical Center and we'll be sure and update you when he's back at KCRC and settled in.
Thanks everyone and keep those prayers coming! They really do work!!!
Sorry for the delay everyone...it's been a busy couple of days and we're just now able to give you an update.Monday was a pretty good day for Kyle. He had a little bit of physical therapy but most of the day, just rested. He's experiencing some major pain in his jaw from what we now know is an infected tooth that had a root canal last year and it appears the cap has come off. They are now treating him with antibiotics and the Dentist will evaluate him in 10 days and then schedule a time next week to cap that tooth again.Tuesday was not a particularly good day. Kyle woke up feeling sick and really didn't want to do anything. He's started running a fever again and his medical team is watching closely for any infection other than his tooth. The good news is that his chest xrays are looking good. His right lung is clearing up fast and he doesn't have to be suctioned as much these days! That's wonderful news and gets him closer to weaning him off that ventilator.Today he is feeling better and has already had physical therapy and occupational therapy and is getting ready for recreational therapy. Still running a low grade fever and his medical team is running some blood tests to see if they can pinpoint the cause of the fever.More soon!
Tuesday, September 8, 2009
What a great day! Kyle is feeling good and has had a busy day with LOTS of visitors and no upset stomach or breathing issues! He was treated with a visit from Aunt Pat, Uncle Nelson from Front Royal, and cousins Mike and John Southard came in from Alexandria along with the "greatMama-Nikki", who was so happy to see him in the wheelchair and sitting outside enjoying the day! While they were outside visiting, he was surprised by MORE visitors, his Uncle David, Aunt Audrey and Adelle, from Falls Church, cousin Ronnie and his wife Mary and their 1 year-old little man, Grady all the way up from Virginia Beach! Also with them was Glen and Erika and their son Matthew! Was a great treat to have ALL of you visit! Kyle enjoyed catching up with them and laughed and smiled more than he has in weeks! He thanks you all for coming to see him! Later this afternoon, his friend Meagan surprised him by driving all the way down from Waldorf! What a wonderful treat!His breathing is very good, no nausea issues today, and feels really good. He was up in his wheelchair for almost 4 hours today and did great! is medical team is thrilled that he was able to do so well today!Thanks again for all your notes! He hopes to get around to responding to everyone very soon and hopefully he will be able to begin updating his page as well! He wants to share his experience and rehabilitation with you all!Tomorrow will be a quiet day with a little Physical Therapy and then Tuesday, his medical team will begin the assessments that they have been trying to get done for a couple of weeks now. He is still scheduled for some same day surgical procedure to place a valve in his stomach to help get his food to bypass his stomach. This should eliminate the sickness, along with a change in the way they give him his medications.Kyle says thanks again to everyone that came to see him today! He hopes to see you all again soon! I think he can finally see some light at the end of the tunnel!
Kyle is doing well today! His lungs are good..still a little congested but doesn't have to be suctioned as much. He did some physical therapy this morning and went outside in his wheelchair. They are continuing to monitor his feeding and while he still feels nauseated, it's not as often.Today was the first day we were able to get a computer in front of Kyle and he has started reading all the wonderful comments that everyone has left him. They really bring a smile to his face. These words of encouragement really do make a difference.We also brought him a new cell phone today and I am happy to say that Kyle is TEXTING ONCE AGAIN!!! We are thrilled that he is able to start communicating with his friends again! This should prove to be great therapy for his hands and his heart! We'll try to get a note from him on page soon!Thanks everyone and we hope that you are having a safe and enjoyable holiday weekend.
Friday, September 4, 2009
Thursday, September 3, 2009 8:15 PM, EDTKyle did transfer back to the KCRC (Kluge Children's Rehabilitat
One thing that was discovered was that Kyle seemed to be start feeling bad after receiving pain medication. So they have stopped giving him a certain type of pain medication and trying another to see if that was causing him some issues.
Kyle was also mentioning
A lot happeni
Wednesday, September 2, 2009 6:30 PM, EDTIt's been a good day for Kyle. He's feeling pretty good today and the ventilator settings are low and he's breathing better! He'll be out of ICU tomorrow and going back to Kluge.
Thank you to EVERYONE for your phone calls, emails and cards...the
Thank you to Shelby at MyEyeDr here in Stafford for getting Kyle his glasses. She's a wonderful, giving person to help us out like that...than
Gary and I want to express our gratitude to our family and friends. Our cup runneth over with all the love and prayers for Kyle and for the rest of the family and please know that nothing goes un-noticed. We are praying for guidance every day, but like our new friends, the Sidewalk Prophets say in the most moving song I've ever heard:
"Be strong in the Lord
And never give up hope
You’re gonna do great things
I already know
God’s got His hand on You
So don’t live life in fear
Forgive and forget
But don’t forget why you’re here
Take your time and pray
These are the words I would say"
Thank you Dave for writting those words...you will never know how much they really mean to us. I repeat these words several times a day and think of how this is so true of Kyle....he will do great things when this is all over!
Thank God for each day everyone and tell your kids and your loved ones that you love them every day!
Wednesday, September 2, 2009 8:18 AM, EDT
Here's the latest!
Yesterday, the took more xrays and they revealed less congestion in that right lung! That's good news. Seems that the aggressive respiratory therapy is having some affect. The GI Specialist came to see him regarding the trouble he has tolerating the feedings. They are going to try a different way of giving him his medications - breaking them up and not giving them to him all at one time, etc. - and hopefully that will eliminate some of his discomfort. They will follow his progress and determine later if something different has to be done.
Last night, he slept well, even with all the all the interuption
They will continue to monitor him in ICU and make the determinati
Tuesday, September 1, 2009 8:41 AM, EDT
The afternoon x-rays showed that right lung was giving him trouble again and had partially collapsed. Since he has a tough time being able to cough, he depends on suction to remove fluids from his lungs. Alot of the fluid is lying in the bottom lobe of the right lung. So the amount they were able to get out yesterday will hopefully be significant.
He slept very well through the night and his saturation levels remained high...a good sign. They will do another x-ray this morning to compare with yesterday and if they feel there is still too much mucus in his lung, they will perform a brochoscopy to remove more out of his lung. They performed several bronch's at Mary Washington and he always was able to breathe well after them.
We'll update later today! Thanks everyone for your continued support! We sure do appreciate it!
Monday, August 31, 2009 12:05 PM, EDT
Just a quick update as of noon Aug 31st....Kyl
As soon as they get him moved and stable, we'll know more!
Thanks everyone and keep those prayers coming!!
Sunday, August 30, 2009 3:55 PM, EDTKyle has had an okay day...had some issues with his oxygen saturation levels dropping so the medical team decided some chest x-ray
Saturday, August 29, 2009 10:30 AM, EDTA weekend of rest...
Kyle continues to get a little better every day! He is feeling good today and his vitals are strong. He will rest this weekend with no physical therapy scheduled and his medical team will continue to treat him in an acute medical situation, helping with respiratory therapy to eliminate this new pneumonia. His breathing is good, he is tolerating the feedings much better but still struggles with getting a good nights rest. They will try some new medication tonight in hopes if him sleeping through the night and getting his much needed sleep!
Friday, August 28, 2009 2:38 PM, EDTToday was a very good day! Kyle was transferred back to the KCRC (Kluge Childrens Rehabilitat
He will stay in an acute care setting at KCRC and then transferred (still within the building) to a rehab setting in about 2 weeks. That's how long they think it will take for the pneumonia to clear up. Then, they have a 2-week plan to wean him off the ventilator. His rehab program will last about 2 months.
While he's in the acute "phase", they will still continue to do physical therapy, occupationa
2955 Ivy Road
He doesn't have a phone in his room yet so cards and letters are the best way to reach him. He's glad to be out of ICU and back at KCRC and they are glad to have him back. We can't say enough about the wonderful staff and medical team there. He's in great hands!
Wednesday, August 26, 2009 11:58 AM, EDTSorry for the delay in postings. We've had a busy couple of days with ALOT going on.
Kyle's move to Kluge in Charlottesv
He slept Monday night soundly for the first time in weeks and Tuesday morning, felt very rested and ready for his busy day.
So after 3 hours of hard work, Kyle was pretty tired and they returned him back to the bed. The afternoon was not as planned though...
They transferred Kyle to the Pediatr
Kyle will remain in PICU for an undetermine
This certainly pushes back his rehab schedule, but he's in good spirits knowing this is only temporary. He fully understands what's going on and is okay with it, and his stomach aches seem to have diminished today which makes him feel much better.
Sunday, August 23, 2009 10:58 PM, EDTTomorrow is the day we've been waiting for! After 22 full days in the ICU at Mary Washington Hospital, Kyle will be transferred to the Kluge Pediatric Rehabilitat
He's had a pretty good weekend in ICU...fever will periodicall
He's ready to start the next phase of his rehab and get to new settings and new friends. We have met some remarkable people and families of patients in the ICU and admire their stregnth and outlook. These will be friends that we will certainly stay in touch with in the future.
Will write more as Kyle gets transferred and settled at Kluge. Thank you all for your kind words and notes. We can't wait to get Kyle in front of a computer so he can read each and every one and see how much love and support everyone has given him.
Thanks and we'll update more on Monday from Charlottesv
Friday, August 21, 2009 1:44 PM, EDTIt's official! Kyle is headed to Charlottesv
Wednesday, August 19, 2009 12:28 PM, EDT
Kyle continues to work towards getting off the vent. He is undergoing some more tests today, primarily a bone scan, to make sure he's not fighting a bone infection. His temperature continues to spike during the day and night, and they are treating that appropriate
We had a meeting with the head of the trauma team and determined that Friday will be the day to plan if he gets sent to a facility with the vent or not. We have learned of a spinal cord injury rehab center at UVA in Charlottesv
Monday, August 17, 2009 5:35 PM, EDTDay 16 and we continue to work with Kyle's medical team for the next stage. Over the weekend, he did a GREAT job breathing without the ventilator for upwards of 2 hours at a time...then
We continue to try and wean off the ventilator, but these small obstacles keep occuring and hopefully tomorrow, we'll meet with his medical team to determine any next steps in relation to the weaning and rehab.
Thank you for ALL the calls, cards and visits - they are all so appreciated and we feel very blessed to have such wonderful people in our lives. Thank you for all the prayers as well and please continue to pray for a smooth recovery...
Sunday, August 16, 2009 10:40 AM, EDTKyle continues to make wonderful progress with his breathing! Yesterday he was able to go three rounds with no ventilator, all for more than 40 minutes at a time! His doctors are very pleased with this. Every day, the goal is to keep him off the vent longer than the day prior. They will continue to monitor his progress and regroup tomorrow, Monday, to determine how much more time they want to keep him to wean completely off the vent. The NRH has criteria that he has to meet in order to transfer him over, so they want to be sure all bases are covered.
He is still being treated for respiratory infection and it looks like there may be a new bacteria growing, so they are taking all precautions with a new antibiotic. He is much more alert, awake and communicati
He really enjoys getting cards from friends and family, so thank you all for sending them. He really does appreciate everyone thinking of him!
Friday, August 14, 2009 10:37 AM, EDTFinally some steps towards progress! Kyle continues to make good progress and gets stronger every day. We were able to watch yesterday as the physical therapists and occupationa
The status of his recovery is starting to finalize as the trauma team at Mary Washington want to keep him in ICU to wean him off the vent. They know him, can continue to work with him and his other injuries instead of moving him to a second stage facility in Washington, DC, to specificall
He is much more alert and aware of his surrounding
He continues to struggle with pneumonia and his lungs tend to fill up somewhat quickly, but his medical team has a plan in place to effectively wean him and get him ready for the next stage of his recovery.
We have told him about all his wonderful friends that have come to see him these last two weeks and he smiled as we read down the list...he asked us to thank you all again!
Kyle will continue to work with his PT's and OT in strengtheni
Wednesday, August 12, 2009 4:34 PM, EDT
His wonderful trauma doctor that admitted him just after the accident has returned from vacation and we're thrilled. We have ruled out the Shepherd Center in Atlanta, so Dr. Roberts is asking for 24 hours to assess Kyle to see if they can wean him off the ventilator and then we send him to the National Rehabilitat
He's resting quietly now and getting some much needed rest....Mor
Tuesday, August 11, 2009 9:21 PM, EDT
Kyle had a pretty good day today. The tracheostom
We had a meeting with a representat
His vitals are stable, breathing well on the new trach tube and now we want to get him out of there as fast as we can to begin the next phase of his recovery. He is more alert than in past days, due to the complete removal of sedation medication, but is kept comfortable on pain meds when he needs them. He needs to now get out of the bed more and into a rehab program, something we hope to have him working on by the beginning of the week.
Thank you for ALL the cards and letters and visitors and calls of support from family and friends. We tell Kyle all about the notes and cards he's received and will be sending them with him to Atlanta.
Monday, August 10, 2009 7:01 PM, EDT
One step forward, two steps back. We had a meeting with Kyle's head trauma doctor and learned today that his respiratory issues are more severe than we thought and he will have to be sent to a rehabilitat
Kyle is alert at times, showing his frustration with the breathing tube and trying so hard to communicate with us.
After he gets the trach and feeding tube, there is really nothing the hospital can do to further his recovery. They will of course monitor him and treat his issues - still has pneumonia - but they cannot do much more than that.
Saturday, August 8, 2009 9:28 PM, EDTToday seemed to be a calmer day. While Kyle is still on the ventilator, they have stopped the constant drip of pain meds and only give it to him when he needs it. He is able to communicate that he is in pain when asked, so the medical team takes care of giving him what he needs.
Looks like Monday the medical team will evaluate the trache option and possibly a different feeding tube. Right now, he has a feeding tube that is in his nose that bypasses his stomach. The new feeding tube will be much more effective and allow him to really get the nutrition he needs so much. Taking the nasal tube out soon will eliminate the possibility of sinusitis and other infections.
His white blood cell count is down - that's good news - and they are effectively treating hi
Each day seems to be something different, but today seemed to be a very calm day. They will keep him comfortable overnight and monitor him again tomorrow!
Monday, August 10, 2009 6:33 AM, EDTKyle remains stable, still with a fever and still intubated. We'll meet with his doctors this morning to discuss the next steps - trach, feeding tube and his pneumonia - and hopefully get him on the path to the next stage, which is getting him stable enough to get into the National Rehabilitat
Kyle has received wonderful care from his nursing staff, Physical therapists, Occupationa
Friday, August 7, 2009 2:57 PM, EDTIt's been a roller coaster of a day. Kyle was doing well enough this morning tha
His medical team thinks the next step will be a tracheostom
His myleogram yesterday showed his spine is perfectly straight and there is no compression - GREAT NEWS! However, he does have a blood clot in his spinal cord and some spinal fluid built up and they will watch that very closely. The blood clot might be what's causing some of the pressure to his cord that restricts his breathing.
Thursday, August 6, 2009 8:49 PM, EDTKyle had a procedure done today called a Myleogram, which uses a special dye to X-Ray to determine the swelling in the spinal canal. We should know the results in the morning.
He had an okay day, breathing over the ventilator and his meds have been decreased, which means he is experiencin
He's very frustated about the breathing tube in his mouth and constantly tries to move his hands up to his mouth to yank them out! Family and friends watch him all through the day to make sure he doesn't
We'll meet with the medical team first thing in the morning to go over the next options and his progress so far, so we'll be sure and give an update tomorrow!
Thursday, August 6, 2009 10:27 AM, EDTAs of today, Kyle remains on the ventilator but off the sedation medication and just using pain meds. It appears that he now has pneumonia and a slight fever, so they are giving him antibiotics and Tylonel and it seems to be working well.
Right now, the doctors are trying to determine if his breathing issue is part of his injury. Even though he is on the ventilator, he appears to be working and breathing over the machine which is a great sign. However, he can't quite seem to take those really deep breathes he needs to in order to get his oxygen saturation level in his blood to where it needs to be. His injury is at C7 in his spine and the swelling of the spinal cord may be causing the muscle weakness in his diaphram. We hope that it's temporary and that's why it's taking so long to remove him from the ventilator.
His cuts and wounds are healing pretty well. They are still pulling glass out of the deep wound in his left arm. This morning, he was waving his arms in the air trying to get to the tube in his mouth, so his arm and finger movement is good! At some point he will need to have a procedure done where they will inject some dye into his spinal column to review the swelling...
Tuesday, August 4, 2009 9:23 PM, EDT
Today was not the best day. We arrived at the hospital anticipatin
This is very worrisome for us as this just prolongs his recovery and rehab. It's one more day that he can't start preparing for his future and getting hea
We are working on getting him into a rehabilitat
Gary and I are so touched by the number of friends that have reached out to us and our family. We are so fortunate to have such wonderful people in our lives, from everyone at WHS where Gary works to my colleagues at AER and all the wonderful members of AER that have written me, to our neighbors, Kyle's schoolteach
Thank you again for ALL your words of encourageme
Bette Anne and Gary
Monday, August 3, 2009 6:18 AM, EDTOn Saturday, July 31 at about 9:00 am, Gary and I received the phone call no parent or family, or friend ever want to receive. Mary Washington Hospital called Gary's cell phone to tell him that Kyle had been in a car accident. They asked about some medical history and asked how far away from the hospital we lived. They said Kyle's okay, but you need to come down to the hospital.
At this point, Gary and I were completely confused and not prepared to hear any of this. The state trooper was next to enter the room to give us the preliminary details of the accident.
During the surgery, a metal plate was placed in his neck to keep his spine aligned and to decompress the spine. Unfortunate
We thank ALL our family and friends and ask that you keep Kyle in your prayers and thoughts. Today will be a very difficult day if we determine to take him off the ventilator and wake him up. He doesn't know the extent of his injuries and about his paralysis and he'll need to be told. He has a great team of Doctors and nurses in the ICU at Mary Washington and we are struggling with how to tell him and help him understand that while he might not be able to walk today, we hope in the future that he will!
Kyle will be leaving Mary Washington at some point and going to a Spinal Cord Rehabiliati
We will update everyone today after we determine the next step.
Monday, August 3, 2009 9:13 PM, EDTSOOO many thanks to everyone who has written us...it's overwhelmin
Kyle had an "okay" day......We all decided that we will forgo the second surgery and have Kyle fitted for a full Halo to help support his neck and begin a natural healing of his neck muscles. So they came in his room early to size him up.....that was at 10 am...the nursing staff then began the process of discontinui
We went to the hospital today with the hopes of getting him off the ventilator and get him breathing on his own and beginning a treatment plan. When they started to bring him out of sedation, in true Kyle form, the first thing he did was fight to get that breathing tube out of his mouth! We were warned that the medication would make him groggy and combative and he would probably struggle to move around and remove the breathing tube, so we took turns holding down his arms and trying to keep him calm. Those arms were flying around! We thought he was going to sit up and yank it out himself!
But before the doctor's will take him off the ventilator, Kyle has to prove he can breathe on his own. He was doing pretty well, but it was taking too long for his halo to get installed and we didn't want to risk any more injury to his neck. So they are keeping him on the ventilator overnight and until tomorrow.
Right now, Kyle is unaware of his condition and we'll have his close family around tomorrow to explain to him what's happened and what we will need to do to get him home.
He will be at Mary Washington Hospital for at leas
He's had many of his wonderful friends and family visit him and while he hasn't been able to acknowledge them in person, we know he must realize they are in the room with him. We'll be sure and share all your notes with him and let him everyone is thinking of him.
Gary and I are overwhelmed with all the love and support our family and friends have given us. We can't thank everyone enough and please know, your kind words and thoughts are very much appreciated. We continue to ask for your prayers and thoughts and we know they are working...K
We'll update everyone tomorrow...